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Connect with Muscular Dystrophy Association's (MDA) National Resource Center where you can work with trained specialists that can help connect you to resources, information about the diseases in our program, support and services, programs, and activities.

Reviews county policies and practices to determine impact on persons with disabilities. Recommends use of state and federal funding for programs and improved accessibility. Recommends changes to policies and practices which may not meet the county, state or federal law. Reviews county program and facility accessibility. Promotes housing, employment, transportation and other activities to meet the needs of persons with disabilities. Educates the community concerning nondiscriminatory practices regarding persons with disabilities.

Disability and Communication Access Board reviews and assesses the problems, needs, services and resources in the State of Hawaii including, but not limited to, employment, education, social services, civil rights, public facilities, housing, vocational training, rehabilitation and recreation. The board publishes educational materials, sponsors workshops and provides technical assistance to industries/agencies, conducts research studies, advises State and County agencies on issues related to persons with disabilities, and conducts testing of sign language interpreters and issues state credential based on test results. The board administers the statewide program for parking for persons with disabilities. They serve as the designated state agency to coordinate state ADA compliance for access to services, employment, telecommunications, and facility and site design, establishes state guidelines for communication access services for persons with disabilities, establishes state guidelines for parking for persons with disabilities, and maintains a statewide database for parking placard. Additional phone numbers: (808) 974-4000 ext. 6-8121# Hawaii County (808) 274-3141 ext. 6-8121# Kauai County (808) 984-2400 ext. 6-8121# Maui County (800) 468-4644 ext. 6-8121# Molokai and Lanai

Two main programs make up the foundation of Abilities Unlimited - the Medicaid Waiver Program and the Employment Program: -Medicaid Waiver Program serves individuals with disabilities referred by the State of Hawaii Department of Health Developmental Disabilities Division, offering personal assistance/habilitation services, adult day health services, and employment services for medicaid waiver clients. -Employment Program serves clients referred by the State of Hawaii Division of Vocational Rehabilitation (DVR), assisting individuals with disabilities and other barriers to gain and maintain employment. Abilities Unlimited works with DVR clients via contracts: Supported Employment Program and Vocational and Work Adjustment Training Services. Additional programs under employment program: -Work-Life Development Program places individuals with disabilities in six-week paid internships in work settings while supplementing their work with recreational activities to provide balance in their lives. -Dis

The mission of the National Down Syndrome Society is to be the advocate for people with Down syndrome. The program envisions a world where all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. National Email: [email protected] Hawaii Email: [email protected]

Distributes printed materials about Parkinson's disease. Through a national network of Information and Referral centers and chapters, sponsors support groups, lectures and conferences, exercise and other programs, and sponsors awareness and fundraising events.

(National Alliance on Mental Illness - Hawaii) NAMI Hawaii provides free mental health support groups and classes for people in recovery and the families that support them. Connection Recovery Support Group -Family Support Group -Family to Family Education -Peer to Peer Education -Family and Friends -Hearts and Minds -Ending the Silence Youth Presentations -NAMI on Campus Youth Clubs -Information and Support -NAMIWalks on Kauai, Oahu, Lanai, Maui, Hilo -Speakers Bureau -Crisis Intervention Team Training for Law Enforcement -Conferences and Workshops NAMI website updated weekly.

(Jdrf International - Hawaii Chapter) Juvenile Diabetes Research Foundation Southern California and Hawaii Chapter provides an outreach program - adult to adult mentorship that runs by volunteers, provides educational materials and information about diabetes, strives to alert the general public about the seriousness of diabetes, raises money to fund diabetes research, and has an advocacy program where they visit senators, etc. regarding diabetes government funding, children gets to travel to Washington DC to meet senators, etc. and talk about diabetes.

The Straub Foundation raises funds in support of Straub Clinic & Hospital. There are many ways you can give, please call or visit website for more information and download a form to send.

(Information and Educational Programs) MS Navigators help connect individuals to the information, resources and support needed to move their lives with multiple sclerosis (MS) forward. These trusted supportive partners help individuals navigate life with MS. Visit the website for more information.

Maintains a national information center for those affected by anxiety disorders, including Panic Disorder, Obsessive-Compulsive Disorder, Post Traumatic Stress Disorder, Generalized Anxiety Disorder, Social anxiety Disorder, and specific phobias. Provides referrals to local treatment providers and local support groups, and provides information on these and related disorders. Publishes an E-Newsletter, Triumph, and detailed pamphlets. Promotes public awareness and education with media campaigns and events. Sponsors an annual conference to encourage researchers in the field of anxiety disorders to share their findings, and funds research.

(Alzheimers Association - Hawaii) Care services for family caregivers and persons living with Alzheimer's disease include educational workshops and classes, care consultations and supportive counseling, neighborhood support groups, and information and referral services to community resources. Offers a 24-hour Helpline, 1-800-272-3900, and the MedicAlert+Safe Return™ program to help reunite wanderers with their caregivers. Creates public awareness about Alzheimer's disease, conducts advocacy efforts at the local and national level, and supports research efforts to find a cure or prevention for Alzheimer's disease.

(St Francis Healthcare Foundation of Hawaii) The role of St. Francis Healthcare Foundation of Hawaii, established in 1984 as an entity of St. Francis Healthcare System of Hawaii, is to raise funds, acquire and hold assets, and provide community education that enhance and support the activities of the healthcare system and our entities.Accepts gifts made by cash, check or credit card is the easiest way to give and provides a tax deduction for the full amount of your gift. Also accepts other types of donations such as cars, please call or write to us for more information on ways to give.

(Epilepsy and Seizures 24 Hours Helpline, Epilepsy and Seizure Helpline, Epilepsy Foundation) The Epilepsy and Seizures Helpline has trained information specialists to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.

HAF partners with various community organizations to assist families with autism access evidenced-based treatment, family support, and other needed resources.

The American Lung Association works to save lives by improving lung health and preventing lung disease, through research, education and advocacy.

Founded by a group of people with OCD in 1986, the International OCD Foundation (IOCDF) is an international not-for-profit organization made up of people with Obsessive Compulsive Disorder (OCD) and related disorders, as well as their families, friends, professionals and others. The mission and goals of the IOCDF are to: - Educate the public and professionals about OCD in order to raise awareness and improve the quality of treatment provided; - Support research into the cause of, and effective treatments for, OCD and related disorders; - Improve access to resources for those with OCD and their families; - Advocate and lobby for the OCD community. Provides information and referral on treatment or support groups for those with obsessive-compulsive disorders (OCD). Publishes newsletter and other materials. Funds research and holds annual conference.

Provides counseling and information on anorexia nervosa, bulimia and other eating disorders. Assists in starting local self-help groups for victims and parents. Provides listing of therapists and hospitals who provide treatment. Distributes its national newsletter to anorexics, bulimics, family members, health professionals and schools. Also works on advocacy issues and does research.

The HBF, founded in 1991, is a national nonprofit organization dedicated solely to those affected by hepatitis B. The foundation accomplishes its work with a dedicated staff of researchers, educators, and outreach experts working with physicians, scientists, academic institutions, corporations, governmental agencies, and others to raise awareness and search for a cure to hepatitis B.

NIH Osteoporosis and Related Bone Diseases National Resource Center is a service provided by the National Institutes of Health. Provides written material on osteoporosis to patients, health professionals and the public in English, Spanish and selected Asian languages (Vietnamese, Chinese & Korean). Also carries materials on other metabolic bone diseases such as Paget's Disease and Osteogenesis Imperfecta. Does not provide counseling over the phone.

Hep Free Hawai'i (HFH) is a coalition of local, national, and global partners dedicated to increasing awareness of and access to viral hepatitis and harm reduction services throughout the state of Hawaii. Born out of a partnership between the Hawaii Department of Health, the CHOW Project (now the Hawai'i Health & Harm Reduction Center), and other community agencies, Hep Free Hawai'i has been successful by connecting with communities across the islands to make Hawai'i truly “Hep Free.” Use the form on the website.

Supports medical research into the causes, treatment, and prevention of diseases of the bones, muscles, joints, and skin. Provides free printed educational materials as well as referrals to major professional and voluntary health organizations.