Care Services and Support | ALS Network

The Golden West Chapter’s evidence based wraparound model of care combines coordinated, customized medical care and community and home-based services and support. The Chapter’s proven Excellence in ALS Care Initiative encompasses all key elements of our Care Services program which are focused on ensuring proactive, expert multidisciplinary care. In addition to providing direct services, we simultaneously engage the ALS community in activities that accelerate the search for effective treatments and cures. The Chapter’s Care Services program is an evidence based “wraparound model of care” that combines fully coordinated and individualized medical care with community and home-based services and support. This model is clinically proven to help people live longer and better with ALS, as it addresses the medical, social, emotional, and financial challenges they face. The Chapter’s approach in the state of Hawaii is unduplicated and tailored for each client and their loved ones. For example, Care Managers help clients and their loved ones access information and resources in their communities, connect with clinicians who specialize in ALS, obtain durable medical equipment and augmentative communication devices available through the Chapter’s Equipment Loan Program, understand and navigate insurance benefits, provide guidance around home modification, help find professional caregivers, and connect with others living with ALS. And if people with ALS and their loved ones have concerns about anything else related to this disease, our Care Managers are there to help.